Paper of the week 28.11.18: The view of experts on initiatives to be undertaken to promote equity

2018-11-29T15:19:45+00:00

Reference:  The view of experts on initiatives to be undertaken to promote equity in the access to orphan drugs and specialised care for rare diseases in Spain: A Delphi consensus. Torrent-Farnell at al 2018 This week’s paper of the week is brought to you by Professor Sir Muir Gray, 3V Executive Director. Bottom line Delivering equity for rare diseases in healthcare is difficult, with no simple solution. What is required is a process that adopts “reasonableness”. Further, despite what this paper says, structural change is not required to improve equity, the creation of networks is required, like those for neurofibromatosis type 2 in England Implications for value improvement  This project focused on a common problem, often overlooked – [...]